Greater Clear Lake Families Exploring Down Syndrome

January meeting - Promising Down Syndrome Research: January 20, 2011

joelburdeaux — Fri, 07 Jan 2011 17:39:49 +0000

Robert Schoen, PhD, President of Research Down Syndrome, will present on the Foundation’s dual mission of enhancing awareness of Down syndrome cognitive research and raising funds to support these efforts. He will provide an update on the progress and promise of Down syndrome cognitive research, including a summary of promising drug targets identified by researchers at Johns Hopkins University, Stanford University and the University of California, San Diego. These drug targets provide the promise of the development of biomedical therapies that could improve memory and learning in persons with Down syndrome. Dr. Schoen received his Doctorate from the University of Texas Medical Branch at Galveston in Human Genetics/Cell Biology.

Paul Watson, father of an eight year-old son with Down syndrome, will join Dr. Schoen and provide a parent perspective on the cognitive research and connect it to other advocacy efforts in education, employment, and inclusion. Mr. Watson works as a fundraiser and collaborative partner with researchers and charities. He also serves on 3 Texas state committees for special education.

Newsletter - December 2010, Vol. 3, Issue 3

joelburdeaux — Sun, 05 Dec 2010 19:51:04 +0000

Newsletter - December 2010, Vol. 3, Issue 3

November event – Mom’s Outing: Nutcracker Market: Friday, November 12, 10:30am

joelburdeaux — Fri, 05 Nov 2010 20:23:34 +0000

Meet at 10:30am; east corner of IH45 and Dixie Farm Rd - Shell station.
Everyone is responsible for getting own ticket at Randall’s.
RSVP by Monday the 8th!

November meeting - Inspiring Self-Advocates: November 18, 2010

joelburdeaux — Mon, 04 Oct 2010 21:42:41 +0000

Self-advocates Andy Noser and Michelle Longrigg share their stories about their quest for independence. Michelle’s mom, Kathie Longrigg, joins them to share a parent’s perspective. An inspiring meeting for parents, young adults and caregivers.

October meeting - Making an Action Plan (MAP) for your child’s future: October 14, 2010

joelburdeaux — Mon, 13 Sep 2010 15:49:41 +0000

How do you prepare for a meeting with your child’s teacher? What can you do to be an advocate for your child?
Become empowered by Making an Action Plan (MAP) for your child’s future. You will get the tools to create a MAP to guide your family to a bright future. Focus on the hopes and dreams you have for you child and communicate them to anyone who will listen.

Deedy Payne is an elementary teacher in CCISD. She has been teaching for 23 years and is certified in Gifted Education, Special Education and ESL. She is passionate about including ALL children in the general education curriculum and has learned many lessons from her fabulous 24 year old niece who has Down syndrome. Bridget has used the MAP process and even presented at her own IEP meetings starting in 7th grade. Deedy will share her story and give you ideas to help you navigate the school system.